It’s about 01:45 – almost exactly 24 hours since my last blog. I’m phone blogging this from the York hospital.

For the first time in days I’ve just experienced a total feeling of calm. The machines stopped beeping (they do that when things are good). He was in-between his hourly obs (where they have to wake him) and inbetween drips and meds. The doctors and nurses at the station outside his room were doing paperwork and Jaygo was fast asleep.

Seconds after that everything burst into a hive of activity again resulting in us moving into a much nicer room (a bit less meditech and an actual bed for me – utter luxury) as another very poorly child has just been rushed in, knocking Jaygo of the poorliest child in York hospital pole position. Moving from the premier High Dependancy Unit to a semi normal room is a massive result.

Jaygo had some longer term intravenous long lines put in today which is the first step on his 6 month road map to recovery. He will be getting antibiotics for around the next 6 weeks and twice daily anti colagulatory injections for 6 months with regular blood sample takings. Felt positive today. It felt like we were getting somewhere and looking at a way to cure things rather than just put out the fires. What was being said made sense (up until the point I nearly fainted as a doc was explaining stuff to me – sleep dep, lots of sugars and red bull / hot ward combo)

He is still critical and not out of the woods yet but we’ve come a long way in the last 24 hours. I strongly believe that all your thoughts and prayers and positive vibes had something to do with that. Thank you.