Things have settled a bit now. Things have got a bit of a roadmap of how they may pan out. Jaygo has been on the up yesterday and today. They have removed his monitor machine (the machine that goes beep and constantly monitors and records his heart rate, respiration rate and blood saturation). They have taken him off hourly observation cycles to 4 hourly – so he won’t be woken up every hour and have blood pressure taken and lights shone in his eyes.

Still worried about his thrombosis – two clots on his main brain drain vein. At least they have a plan of how to hopefully get rid of these safely.  Still worried about his eyes – they are converging / he is cross eyed a bit most of the time and has double vision. That’s something to do with the increased pressure on the nerves behind his eyes so the looky in muscles are over compensating. Still worried about the lack of food he’s been keeping down. He has been keeping count of the ammount of times he’s been sick since this all started – 42 in total. Still – today we did manage to get to the canteen and have some (surprisingly lovely) Sunday carvery fayre. He even managed to walk some of the way back to the ward.

He has been more concious over the past couple of days – looking back, I think his body was coping with things by sleeping as much as possible (and who can blame it) but over the last couple of days he has been sleeping a fair bit – but it seems to be through exhaustion (due to not having more than 1 hours sleep at a time for the past few days) rather than a coping mechanism if that makes sense.

I’ve been with him since Friday. Life in the hospital has a strange pace to it. We’ve been having some lovely times together around everything. Read a fantastic book to him called You’re a bad man, Mr Gum . This has been an absolute tonic for the both of us. Someone described it as a cross between Roald Dahl and Montey Python. Very funny indeed. Finished that yesterday with a heavy heart then discovered there is a series of 8 or so of them so got hold of the next one on my kindle straight away.

Yesterday was the cricket world cup final. Great match. I was listening to it in the room with Jaygo, Eirene and Sophie (Felix has been on a school trip in Northumberland)  and we got to snuggle up and doze in a sumbeam whilst listening to it. When I closed my eyes, it felt almost like normality.

For someone who’s not had more than 3 hours straight sleep since last Wednesday night, I am feeling far too awake, So I’m going to toddle off and read for an hour or so and hopefully get some blissfully unbroken deep sleep. n’night.