I didn’t really realise how close to Leeds city centre the infirmary was. We had popped up the fantastic roof garden here yesterday – and wanted to show Eirene but the had to close it to let a helicopter land. Down to the front doors and out we went. Spectacular day – got him his Vit D fix! Sat next to a lovely water garden for a bit and the three of us chilled. So glad we got to go out. Leeds is being kind to us. Mealtimes are now being respected – so far today Jaygo has eaten lots – weetabix, toast, chocolate, more chocolate, a bit of cottage pie, pizza, more chocolate and loads of fluid. Some of his meds have been reduced and they habe tweaked his IV so we can get a few blocks of time when he is not plumbed in.
Sophie and Felix are flying the DragonDrop flag at Newby Hall this year (first Easter Fun at Newby gig we’ve missed out on on.. 7 years? Need to look that one up.). Jaygo is chilling with a bit of telly now. I am off to read a bit of ‘The End Of Mr Y’ now.