Just got back from York Hospital. Jaygo conditions has taken a turn for the worst. His MRI scan shows that he’s got thrombosis / two blood clots on the veins that drain the brain called the venous I think. (Not right up on human hardware). He’s been moved to a High Dependency Unit. It’s a known knock on effect from the massive infection he’s had – which partially has been receptive to antibiotics – but it looks like he’ll need those for 6 weeks. The good news is that he was in ace spirits when I saw him tonight before he went sleeps. Really happy and joking. The other good news is that it’s apparently not as bad as it can be in adults, as kids veins / arteries are younger and bounce back much better. They may not need to treat it – it may just go away by itself but one option on the cards is some medication that will dissolve the clots. We should know in the next few hours what the think is best. In consultation with specialist in Leeds. They may have to move him to Leeds Hospital though as there are specialists there. The worst bit for him at the moment is the relentless medical fussing. He’s got a drip, several things stuck to him attatched to the machines that go bleep and his sleep is getting broken every hour for obs / meds. Poor lamb.
I almost feel like I’ve jinxed it recently by saying “he’s on the mend”. I’ve been chronicling the path of Jaygo’s progress through my electronic outlets – this blog, twitter, facebook and flickr. It’s what I do. Now I’ve started I feel I’ve got to keep doing it. Here’s my life with its ups and downs. Friends and relatives look to this site to see how we are doing and they would worry if more if I said nowt. Ups and downs though – this is probably one of the biggest down periods I’ve had since dragondrop.org began. Part of me thinks- why am I doing this? Why am I broadcasting to the world about something that most would keep private, and for close family only? Perhaps it’s therapy. Perhaps it’s getting it off my chest. It generally is – like this – a pure flow of ink that I mash into a keyboard. Perhaps it’s the original notion of this ‘dear diary’ blog that I’ve been populating for the last 9 years. Perhaps its so I don’t have to explain it more than once. What ever it is it’s happening. Eirene and I are holding up. I’ lost it’ a bit earlier, but have been keeping my chin up a bit for a past few hours. If you do have a God, please can you say a prayer for my little man.