Just got back from York Hospital. Jaygo conditions has taken a turn for the worst. His MRI scan shows that he’s got thrombosis / two blood clots on the veins that drain the brain called the venous I think. (Not right up on human hardware). He’s been moved to a High Dependency Unit. It’s a known knock on effect from the massive infection he’s had – which partially has been receptive to antibiotics – but it looks like he’ll need those for 6 weeks. The good news is that he was in ace spirits when I saw him tonight before he went sleeps. Really happy and joking. The other good news is that it’s apparently not as bad as it can be in adults, as kids veins / arteries are younger and bounce back much better. They may not need to treat it – it may just go away by itself but one option on the cards is some medication that will dissolve the clots. We should know in the next few hours what the think is best. In consultation with specialist in Leeds. They may have to move him to Leeds Hospital though as there are specialists there. The worst bit for him at the moment is the relentless medical fussing. He’s got a drip, several things stuck to him attatched to the machines that go bleep and his sleep is getting broken every hour for obs / meds. Poor lamb.
I almost feel like I’ve jinxed it recently by saying “he’s on the mend”. I’ve been chronicling the path of Jaygo’s progress through my electronic outlets – this blog, twitter, facebook and flickr. It’s what I do. Now I’ve started I feel I’ve got to keep doing it. Here’s my life with its ups and downs. Friends and relatives look to this site to see how we are doing and they would worry if more if I said nowt. Ups and downs though – this is probably one of the biggest down periods I’ve had since dragondrop.org began. Part of me thinks- why am I doing this? Why am I broadcasting to the world about something that most would keep private, and for close family only? Perhaps it’s therapy. Perhaps it’s getting it off my chest. It generally is – like this – a pure flow of ink that I mash into a keyboard. Perhaps it’s the original notion of this ‘dear diary’ blog that I’ve been populating for the last 9 years. Perhaps its so I don’t have to explain it more than once. What ever it is it’s happening. Eirene and I are holding up. I’ lost it’ a bit earlier, but have been keeping my chin up a bit for a past few hours. If you do have a God, please can you say a prayer for my little man.
If it keeps you together then it’s probably fine. A together dad has to be more use to Jay right now, so just keep blogging if it works for you. Hope it all gets sorted soon. Sounds like he’s got good Docs. Big luv to you all mate.
Matt old bud,
All our prayers and thoughts are with you all and Jay (whatever god we may or may not believe in). This is a testing time for you all for sure, and one that will surely bring you even closer than you were before (if that is possible). The only words I can offer are be positive and be strong for each other, and reach out to us all whenever you need to – we are all here for you anytime.
Si. xx
Matt, like Simon says, i’m sure we’re all saying a prayer for Jay in whatever way we can and to whomsoever it is we believe in. For what its worth I know I am and will continue to. Maybe your blogs and microblogging (did he say…) is to the same end. I for one am pleased and grateful that you do update the way you do.
As always, you know where we are if there is anything you need or anything we can do.
Drnx
My love and thoughts are with you x
As i’m sure you know all our thoughts are with you and the family and if you need me to do anything just say the word.As for blogging your way through dark times,i did it when i was rehabbing and also when i relapsed and it actually helped me to make some sense of things because i could type freely and read it back to myself, seeing it on a screen stopped it from being a noise in my head at the time.Ive often thought that blogging/facebook/twitter is the modern version of screaming into a pillow and if it works for you like it does for me then it can only be a good thing.Of course it also stops people putting their foot in it when they see you and avoids awkward retelling of harsh times.
all my love to you and your family you know ive always regarded you as a good mate and you know im very fond of your family as many are.Big Love Matt, G