This was yesterday morning in York Hospital – the sun was shining, Jay and I were tucking into banger sandwiches whilst he had the attentions of several young female nurses!

Not been a bad run since then. A bit sick yesterday am and a bit of pain round the site if the new IV central line thingy and a weird pins and needles sensation but no sickness in the afternoon and two hot meals (including a halal curry – top tip for if you are getting bored of normal hospital food).

Its hard as a parent to make the right judgement calls on not much sleep by yesterday afternoon. Loads going on – its hard not to make knee jerk reactions and instead make considered responses. Yesterday I recognised that Jay was ‘just’ tired. By yesterday afternoon he was in a terrible mood and complaining about everything and acting in great pain. At one point I was really worried and then I thought – hang om – I know this – he is ratty through lack of sleep. He was up loads the night before. I decided that almost above all else he needed lots of sleep. Over the last 12 hours, he has slept lots and I have where poss (apart from waking up for meds) encouraged sleep. He is still sound asleep.