I am so very proud of not only my boy Jaygo but also my Felix and Sophie who have been putting up with this all admirably. Even tonight when I was hitting a bit of a low patch at dinner, Felix patiently and maturely asked if I was OK and gave me a bit of support. Sophie has been wonderful as well. She has got such a lovely infectious temperament, it’s hard to stay down for long.
So we are back in Harrogate district hospital. I am blogging this from my camp bed next to Jaygo’s bed. Jay is being so brave. Just had his midnight IV treatments and he let the nurse inject without any fuss. Just moved into his own room in Harrogate as the slightest noise was aggravating an acute headache earlier. He seems much happier now though. His eye is converging a lot more today and the docs said he has three clots in his head not two but they didn’t seem to be a third extra worried and that the treatment already prescribed is suitable. It does feel at times that there’s not much progress being made but on the other hand he’s doing really well. Keeping my faith in the NHS.
Watched with a keen eye the actual process of giving him his antibiotics and the nurse gave me some great tips and explained a bit about it. Deffinatly not rocket science. Its going to dominate our lives though for a bit. Going to catch a few hours kip till the next iv in 6 hours now.