I popped into hospital this morning on the way to work. He had a good day yesterday but quite a rough night last night. Eirene has been with him. He’d been talking about Dada food a lot so I made him a Matt Spesh Brown Windsor Soup last night that he’ll hopefully be tempted with for lunch. Jaygo showed me… Read more →
Lego, originally uploaded by DragonDrop. Super nice to see him doing something he enjoys doing.
I’ve been micro logging Jaygo’s ins and outs (above pic). It is quite handy and actually makes me feel a bit useful. Poor lamb is up to 62 vomits in total after this mornings sick-a-thon. They are in consultation with Leeds over this – could be do do with too much fluid around the brain. Diaretic pills subscribed for this… Read more →
I am so very proud of not only my boy Jaygo but also my Felix and Sophie who have been putting up with this all admirably. Even tonight when I was hitting a bit of a low patch at dinner, Felix patiently and maturely asked if I was OK and gave me a bit of support. Sophie has been wonderful… Read more →
Just got back in from the hospital. It is so nice having him back in Harrogate. It meant I could sit with him for a couple of hours and Eirene could see the other two for a bit. He told me he is feeling quite a lot better. He is looking a lot better. He has been keeping food down… Read more →
Just a really quick update – Jaygo travelled from York Hospital to Harrogate Hospital today (by Ambulance) and we are really pleased that he is closer to home. We are waiting on some results from a blood test to see if his anti coagulation injections are ‘doing the job’ at the moment and trying to pin down when he may… Read more →
Eirene just sent me this pic of our boy Jay. He’s at the canteen at York Hospital eating curry and chips.
Things have settled a bit now. Things have got a bit of a roadmap of how they may pan out. Jaygo has been on the up yesterday and today. They have removed his monitor machine (the machine that goes beep and constantly monitors and records his heart rate, respiration rate and blood saturation). They have taken him off hourly observation… Read more →
It’s about 01:45 – almost exactly 24 hours since my last blog. I’m phone blogging this from the York hospital. For the first time in days I’ve just experienced a total feeling of calm. The machines stopped beeping (they do that when things are good). He was in-between his hourly obs (where they have to wake him) and inbetween drips… Read more →
Just got back from York Hospital. Jaygo conditions has taken a turn for the worst. His MRI scan shows that he’s got thrombosis / two blood clots on the veins that drain the brain called the venous I think. (Not right up on human hardware). He’s been moved to a High Dependency Unit. It’s a known knock on effect from the massive infection he’s… Read more →
They think Jaygo has got Gradenigo’s syndrome – as a knock on effect from the Mastoid infection. It’s fully treatable without surgery from what I understand. It’s an infection of the area behind the eyes (I think) causing double vision and his vertigo symptoms are back. Yesterday he had a CT scan and today another MRI scan. He is back… Read more →
It’s been quite a week! So Jay’s condition got worse, then better, then worse again. On Friday night they decided to scoot him across to York in an ambulance for an emergency operation to drain his infection and reduce the pressure in that area of his head. I had an awful drive as the A59 was closed and the diversion signs were… Read more →
Firstly – thank you all for the support, kind words, thoughts and offers of help – we really really appreciate. He is doing a bit better today – he has been sleeping pretty solid but he managed to keep down his first drink in several days (He’s been having fluid replacement through a drip). Still on the antibiotics in large… Read more →
Several days ago my 9 year old was struck down with a mystery illness. It started out as a bad ear ache – the kind he often gets after swimming. The pain got more and more acute and then by Sunday the vomiting started. Eirene took him to see a doc who suspected it was an infection on his saliva gland. A course of anti biotic was prescribed. His sickness… Read more →