Jaygo recieved a gift posted all the way from the States today – it created a MASSIVE grin on his noggin. So nice to see. There’s a couple more photos of the moment on my flickr site
Had an appointment with the opthamologist this morning and they gave me a souvenir photo of the back of Jaygo’s eyes.
Jaygo for lunch!, originally uploaded by DragonDrop. They let Jaygo come home for lunch. He requested my French Onion Soup with Gruyere croutons. So nice to have everyone back for a bit. Such a nice day.
This was yesterday morning in York Hospital – the sun was shining, Jay and I were tucking into banger sandwiches whilst he had the attentions of several young female nurses! Not been a bad run since then. A bit sick yesterday am and a bit of pain round the site if the new IV central line thingy and a weird… Read more →
He is back now. He is fine.
Its about 1.30am and I am waiting for Jay to come back from theatre. A fairly minor procedure on the grand scheme of things – a long line. Having a man I had only met a short while before gas my boy to sleep in front of me then wheel him away is one of the hardest things ever.
My baby boy, originally uploaded by DragonDrop. There’s something very comforting about watching him sleep. Ups and downs kind of day. He’s just had a bath though and was fairly wobble free on the way to and from the bathroom.
Back at the hospital. Just wanted to drop a quick blog to say dont worry , I’m cool. So Jaygo is making progress bit it is slow going. A lot of the pain has gone but the sickness is on and off a bit more . He has burst of feeling good then bursts of feeling bad. Just had visits… Read more →
Friends gone home now. Been out for what was a lovely few hours. Brave face wasn’t hard. Good food company cricket banter. Perhaps the beers have made me feel sorry for myself. Perhaps the brave face isn’t as easy as I thought. Just want all my lot home to roost now. Bit sad. Lot sad. Don’t worry though. This is… Read more →
I popped into hospital this morning on the way to work. He had a good day yesterday but quite a rough night last night. Eirene has been with him. He’d been talking about Dada food a lot so I made him a Matt Spesh Brown Windsor Soup last night that he’ll hopefully be tempted with for lunch. Jaygo showed me… Read more →
Lego, originally uploaded by DragonDrop. Super nice to see him doing something he enjoys doing.
I’ve been micro logging Jaygo’s ins and outs (above pic). It is quite handy and actually makes me feel a bit useful. Poor lamb is up to 62 vomits in total after this mornings sick-a-thon. They are in consultation with Leeds over this – could be do do with too much fluid around the brain. Diaretic pills subscribed for this… Read more →
I am so very proud of not only my boy Jaygo but also my Felix and Sophie who have been putting up with this all admirably. Even tonight when I was hitting a bit of a low patch at dinner, Felix patiently and maturely asked if I was OK and gave me a bit of support. Sophie has been wonderful… Read more →
Just got back in from the hospital. It is so nice having him back in Harrogate. It meant I could sit with him for a couple of hours and Eirene could see the other two for a bit. He told me he is feeling quite a lot better. He is looking a lot better. He has been keeping food down… Read more →
Just a really quick update – Jaygo travelled from York Hospital to Harrogate Hospital today (by Ambulance) and we are really pleased that he is closer to home. We are waiting on some results from a blood test to see if his anti coagulation injections are ‘doing the job’ at the moment and trying to pin down when he may… Read more →