Beautiful

Close-up of a child's face with blue eyes, lying on a pillow

Just got back in from the hospital. It is so nice having him back in Harrogate. It meant I could sit with him for a couple of hours and Eirene could see the other two for a bit. He told me he is feeling quite a lot better. He is looking a lot better. He has been keeping food down and taking his meds really well. We are letting him eat what ever - sweets, fizzy pop - anything to try and get the calories back in him after nearly 3 weeks of hardly eating. Having a go on a new iv machine that looks easy enough to operate. I guess it could be like the set up we will have at home. Its got buttons and a screen. I am good at buttons and screens. Injections are going well. Testing a different system that will equate to only one jab per day for 6 months. Better than two. Fingers crossed - blood test results will tell us if it is suitable I think tomorrow. His eye is still pointing in (as you can see a bit here although his close view angle of the camera make is look quite natural I think) but Doctors say this will go soon. This is the pressure on the nerves thing.

Missing normal life. Feeling quite lonely over the past few evenings. Missing Eirene. I have seen less of her in the last two weeks than himself. Either her or I have been by his side 24/7 - meaning the other is with our other two kids or taking care of something else - meaning we are two ships that pass in the night. Really hope he can get home soon.

1 comment

Luco

So good to see he's getting better chuck! More chocolate for that lad as easter is coming up :P See you when I get back next week :) xxx

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