Magic room , originally uploaded by DragonDrop . Jaygo has been OKd for a home visit today. His friend from school popped over for a visit. Eirene and I are sat in the front room drinking green tea, eating lush brownies…
Family
Matt, the main blogger round these parts is patriarch and assistant manager to a rather special family. Other members are: Eirene, patient and beautiful wife and mother to their 4 mini them. Introducing the DragonDroplets: Felix (born 1998), Jaygo (2001) Sophie (2006) and Annie Mo (2013). Augmented with a Labradinger dog (half English Springer, half Chocolate Lab).
548 posts
Magic room
Sleepy at homeSleepy ay home , originally uploaded by DragonDrop . So Jaygo has been allowed out of hospital for the last 3 afternoons. Great to get him out and about. Yesterday we went to Bilton Gala for a bit - but it tired him…
Felix in a Sinclair C5Felix in a Sinclair C5 , originally uploaded by DragonDrop . Superb day yesterday. They have changed all of Jays meds - no more anti biotics for a start - resulting in a whole 8 hour gap between meds - which the staff…
Kate's wedding dress and the royal wedding cakeKate's wedding dress and the royal wedding cake , originally uploaded by DragonDrop . A remarkable improvement in Jay today. His eyes are almost back to normal, nearly all the double vision has gone and his balance is a…
- Spinal Tap
So Jaygo had a Spinal Tap (rock and roll) to relieve intercranial pressure. It was very high apparently - the reading was at 56 something or others (psi?) and it should be around 20 for a Jaygo type human. They managed…
Look! No lines!Look! No lines! , originally uploaded by DragonDrop . Such a relief getting rid of Jaygos cannula yesterday evening. The Doctor that removed them was a doctor who helped look after Top Gear's Richard Hammond after his…
- Positive.. I presume.
A rough night but Jaygo slept till 11am! I've just had a meeting with Dr Livingstone. I like him. He is going to speak to E.N.T. in York and see if we can stop IV and go with oral antibiotics instead - that would be a…
Healing handsJaygo at Nelson Mandela Gardens, Leeds , originally uploaded by DragonDrop . I didn't really realise how close to Leeds city centre the infirmary was. We had popped up the fantastic roof garden here yesterday - and…
Jaygo on tourHospital Festival circuit VIP , originally uploaded by DragonDrop . So we are now in the Paediatric Neurology department in Leeds General Infirmary. Left Harrogate District with a bit of a sour taste in our mouths after…
The back of Jaygo's EyeHad an appointment with the opthamologist this morning and they gave me a souvenir photo of the back of Jaygo's eyes.
Sophie is 5Don't know quite how we did it - but we managed to get a traditional 5 year olds birthday party into the mix for today! There's a very short video here
Big grinJaygo recieved a gift posted all the way from the States today - it created a MASSIVE grin on his noggin. So nice to see. There's a couple more photos of the moment on my flickr site
Jaygo for lunch!Jaygo for lunch! , originally uploaded by DragonDrop . They let Jaygo come home for lunch. He requested my French Onion Soup with Gruyere croutons. So nice to have everyone back for a bit. Such a nice day.
One of the better momentsThis was yesterday morning in York Hospital - the sun was shining, Jay and I were tucking into banger sandwiches whilst he had the attentions of several young female nurses! Not been a bad run since then. A bit sick…
- Waiting
Its about 1.30am and I am waiting for Jay to come back from theatre. A fairly minor procedure on the grand scheme of things - a long line. Having a man I had only met a short while before gas my boy to sleep in front of…