I popped into hospital this morning on the way to work. He had a good day yesterday but quite a rough night last night. Eirene has been with him. He'd been talking about Dada food a lot so I made him a Matt Spesh Brown…
Matt
2053 posts
Nin Jaygo
DragonDrop fruit machineThere are apparently some fruit machines out there in the wild now called DragonDrop. What ever next?
LegoLego , originally uploaded by DragonDrop . Super nice to see him doing something he enjoys doing.
A day in the lifeI've been micro logging Jaygo's ins and outs (above pic). It is quite handy and actually makes me feel a bit useful. Poor lamb is up to 62 vomits in total after this mornings sick-a-thon. They are in consultation with…
- Proud
I am so very proud of not only my boy Jaygo but also my Felix and Sophie who have been putting up with this all admirably. Even tonight when I was hitting a bit of a low patch at dinner, Felix patiently and maturely…
- Quick Jaygo update
Just a really quick update - Jaygo travelled from York Hospital to Harrogate Hospital today (by Ambulance) and we are really pleased that he is closer to home. We are waiting on some results from a blood test to see if…
BeautifulJust got back in from the hospital. It is so nice having him back in Harrogate. It meant I could sit with him for a couple of hours and Eirene could see the other two for a bit. He told me he is feeling quite a lot…
This pic makes me happyEirene just sent me this pic of our boy Jay. He's at the canteen at York Hospital eating curry and chips.
Our initialsOur initials , originally uploaded by DragonDrop . Came home from a weekend in the hospital to find that two lovely friends had done a garden make over for us. New flowers, mended bench, solar lights a little bee and…
Each day as it comesThings have settled a bit now. Things have got a bit of a roadmap of how they may pan out. Jaygo has been on the up yesterday and today. They have removed his monitor machine (the machine that goes beep and constantly…
CalmIt's about 01:45 - almost exactly 24 hours since my last blog. I'm phone blogging this from the York hospital. For the first time in days I've just experienced a total feeling of calm. The machines stopped beeping (they…
- Not an April Fool
Just got back from York Hospital. Jaygo conditions has taken a turn for the worst. His MRI scan shows that he's got thrombosis / two blood clots on the veins that drain the brain called the venous I think. (Not right up…
- Gradenigo's Syndrome
They think Jaygo has got Gradenigo's syndrome - as a knock on effect from the Mastoid infection. It's fully treatable without surgery from what I understand. It's an infection of the area behind the eyes (I think)…
Things are looking upIt's been quite a week! So Jay's condition got worse, then better, then worse again. On Friday night they decided to scoot him across to York in an ambulance for an emergency operation to drain his infection and reduce…
Quick Jay UpdateFirstly - thank you all for the support, kind words, thoughts and offers of help - we really really appreciate. He is doing a bit better today - he has been sleeping pretty solid but he managed to keep down his first…